Global platform for cancer patient support
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We are seeking funding to develop the first platform for global cancer patients and survivors support. We want to provide a searchable database with global coverage, providing links and summaries (both in English and the local language when not English) to support groups, associations, and foundations worldwide, that offer free services to cancer patients and caregivers. We also want to provide a personal service to anyone with a special need, or in search of a hard-to-find help not covered in our platform. Our services will always be open to everyone and free of charge.

Why are we doing this

We want to help cancer patients and survivors find help. There currently is no platform that provides global and comprehensive cancer patient support. We propose to do just that.

Why us: Cancer is not limited to any country or group of people, it is a global disease. The Cancer Epigenetics Society (CES) is the only organization worldwide that dedicates its efforts to supporting cancer research and helping cancer patients and their families globally. CES is a Full Member of the Union for International Cancer Control (UICC), an exclusive international World Health Organization (WHO)-associated coalition of the major players in cancer control that includes institutions like the CDC, Johns Hopkins University, Harvard University, MD Anderson Cancer Center, Memorial Sloan-Kettering Cancer Center, MIT, and the NIH/NCI. The present campaign is centered on supporting cancer patients find in a timely manner the help they need, either locally or anywhere in the world, including finding experimental treatments when all other approved options have failed.

How will we do it: We are creating a global community built around CES staffers, members (currently in 154 countries), freelancers, volunteers, and cancer patients and their friends and family, to create and expand on this platform to support cancer patients worldwide.

How will it work: To so to speak probe the field, we have already created a database of 100 associations from 20 countries (the non-searchable, preliminary platform is accessible from the Society’s website). We want to make the database searchable (location, service type, cancer type, etc.), and increase the number of entries by about 500-1000/year. For those in search for a support group or association not covered by the current database, we will provide a free-of-charge personalized search service. For the countries not covered by our language skills, we will hire local freelancers.

Budget: We need 50k to start the project and run it for 2 years. Should the donations exceed the requested amount, we would use the additional donations to develop more functionalities and involve more people. If we raise at least 10k, we can already build the searchable web platform. But obviously, the more money the more coverage, functionalities, entries, languages, and freelancers and staffers we can bring in to the project, and ultimately the faster we’ll provide the most comprehensive cancer patient support possible. Once the project is up and running, we will further develop the platform to include forums, blogs, and so on.

IT: 10K
Staffers: 10K
Freelancers: 25K
Additional program operating expenses: 5K

Total: 50K

How we will use your money: 95% of the donations will be used on the program itself, and about 5% will be used on overhead costs.

Why this is important: In the US alone, there currently are nearly 16 million cancer survivors, and based on projections from the National Cancer Institute (NCI), about 1.7 million women, men, and children will be diagnosed with cancer in 2017, adding to the already very large toll. To make matters worse, the number of new cancer cases is expected to rise worldwide by about 70% over the next 20 years according to the World Health Organization (WHO): cancer is (and unfortunately will continue to be) one of the leading causes of premature loss of life and suffering. As anyone of us can be diagnosed with cancer any time, we think that everyone would agree that bringing together the best possible resources to help cancer patients and survivors is a must. With your help, we can make those resources a reality and bring them to the patients, friends, and families.